This is fairly accurate – a few rides didn't get added – not a bad year…. https://t.co/XE7EGeR1gI. Anyone want to go for a ride?
— Andy Seguin (@andy_seguin) January 6, 2016
If you are reading this and you have made a donation to my #pmc2015 ride across Massachusetts – again, I say thank you! If you have not made a donation yet, here’s the scoop. This weekend, I am riding my bike 300 miles in 3 days as part of the Pan Mass Challenge. We are raising money for cancer research at the Dana-Farber Cancer Institute in Boston. 100% of each donation is tax-deductible and will go to DFCI. Each dollar matters. I ride because I can – I am a two-time cancer survivor. Our goal this year is to raise $45 million and we need some help.
I am asking you to make a donation today. Here’s the link: http://www2.pmc.org/profile/as0171. It will take you a few moments. And it’s simple – your donation will save lives.
Please check out my blog for more stories about my cancer journey and my ride.
This morning, I completed my final training ride for this year’s Pan Mass Challenge. I didn’t take a selfie (this photo was taken last weekend). I just rode and thought about the people who have shared their cancer connection with me. It’s hard to ride with the sun rising in your eyes that are full of tears. Frankly, you do get used to it.
I set some goals at the beginning of the year – to be a more impactful advocate for cancer survivors, to be a better fundraiser for the PMC, to be a more engaged teammate to Team Forza-G, and to train my tail off. If I can do these things as well as my training has gone, I can rest well. I have already ridden more miles this year than any other year and this month, I have ridden more miles than I have in any other month of my life. After 1,331 miles and an estimated 82,000 feet of vertical climbing, I am officially done training and ready for the PMC.
My focus is now on enjoying my 3-day ride across Massachusetts with my 55 Forza-G teammates and our families, the 5,500 plus riders, the 3,000 plus volunteers, with all of the well-wishers along the route, and without a doubt, with my father-in-law Norm, who will be riding in his first PMC this weekend!
Special thanks to my training partner and teammate Mark D’Agostino for sharing many laughs along the roads of Maryland and Pennsylvania with me throughout the winter, spring, and summer.
I am so thrilled to share this video with everyone. Not because I am in it, although I am very honored and proud of being included. It is because for my many friends and family who only know the PMC through me, this is a chance for me to introduce you to some of my very special teammates on Forza-G.
It is with great pleasure that I introduce to you:
- our team founder and insatiable captain Matt Dillis,
- my great friend and perhaps the best person I know, Jaime Schier, who talked me into doing the PMC,
- and my fellow cancer survivor Betsy Bowman who inspires me with her humor, spirit, and love of life.
I would love your comments. Thanks to our teammate Jay for conceiving of and producing this video piece.
Members of Team Forza-G talk about the origins of the team and why they ride the Pan Mass Challenge. Video courtesy of Last Minute Productions.
The 2015 ride is 2 weeks away – please help us achieve our fundraising goal by making a donation at http://www.pmc.org/tf0086.
One year ago this week, I was trying from afar to support my dad as he was starting his chemo treatments and to help my mom as she was managing the abrupt changes in her household that cancer was again causing. I was also gearing up for my eighth PMC and my first effort at our team’s Day Zero ride from the New York border to Sturbridge – a mere extra 100 miles piled on top of the main event’s 192. And I was reeling from a followup visit that was not boring enough.
If you have read my blog or are friends with me on Facebook, you will know that my oncologist and I use the term “boring” to describe when I have bloodwork and CT scans that show no evidence of cancer. Last July 14th, I had my regular oncology followup early in the morning. The procedure for these followups were the same back in 1996-2000 as they are today. Get blood drawn. Get CT scan. Wait. Talk to doctor. Boring. Go home or go to work. But this time, it wasn’t boring.
The oncologist actually wasn’t there that day – I spoke with my nurse. She looked at the paper a few times and took a deep breath. It didn’t strike me that something was wrong. I honestly don’t remember what she said, it was something about lymph nodes…. abdomen… enlarged… talk with Doctor…. more tests needed. I was stunned. That was not BORING!
I haven’t shared this part of my cancer journey with many people. Let me jump ahead to the end before I tell the rest of the tale – at my last CT scan in May, the lymph nodes were no longer enlarged or showing any cancer-like tendencies, and we have gotten back to regular monitoring and followup. I am not being treated like I am having a possible recurrence. Back to just being your everyday, average, two-time cancer survivor. That’s the good news.
But I am sharing this story of the close call and the 10 months of uncertainty and discomfort that it caused in our lives because this is not uncommon. As diagnostic technology advances, more people are learning about ‘possible cancers’ or other potential diseases at a very early time. Sometimes, the body just takes care of these things. Other times, the body needs some help. Twice, I’ve needed that help. This episode last summer, it seems that my body took care of it. Who knows how many times my body has just taken care of it?
The stress caused by learning that you may be having a recurrence or may have cancer can be paralyzing. As I rode the PMC last year, I wondered if I would ever be able to do it again. I tried to learn about what the treatment options for round 3 of Andy vs. Hodgkins Lymphoma were going to be. The answer is that it is really serious stuff with some pretty serious risks. I wondered if the stress of not knowing if I was having a recurrence was going to actually going to cause me to have a recurrence.
Somehow, we pushed on. As summer turned to fall and then winter, I doubled down on my cycling training, hoping to spin my legs so hard that the lymph nodes would shrink. That makes sense right? But really, I had to workout to tire my mind so that I could sleep. I spoke with a few different oncologists about how to get a second opinion. All this while going through more tests, scans, and biopsies to determine if the initial results showing “enlarged mesenteric and pelvic lymph nodes” were truly “compatible with disease recurrence” (that’s what the report said). We couldn’t make a plan until we knew if it was a recurrence or not and that wasn’t going to happen until the nodes shrunk or we could identify biopsied cells as lymphoma.
In August, there was a PET scan. Still enlarged and metabolically looking like possible cancer. Then in September, they did a needle biopsy. Unfortunately, the location of these nodes is inside my abdomen and pelvis – they don’t want to do surgery to remove one or some (as they have done both times in the past) until they have more definitive PET results or a more accessible-via-surgery node. The needle biopsy was inconclusive. So we wait. November was a CT scan that showed more of the same. The tension and stress continued to build. I didn’t broadly share this as we went through it because we didn’t know what was going on. I didn’t have cancer. But I didn’t not have cancer either. And if we did find out that it was a recurrence, there would be plenty of time to discuss and share. We had a few close friends and family members to discuss this with, but that too was challenging and, at times, exhausting, just sharing the many steps, options, and results as they presented themselves.
After the November scan, my oncologist said that we would check my blood again in February. Nothing extraordinary there. So we waited until May to do more bloodwork and another PET scan. Certainly at this point, 6 months after my last scan, there would be something different, some movement one way or another. And there was – the report from that PET scan reads “near complete resolution of the metabolic activity previously seen external iliac lymph nodes”. And most all of the nodes were back to their normal size and all of them had shrunk in size. All that to say – my body was taking care of it and that the recurrence was called off.
And all of a sudden, I am expected to go back to the rest of my life. It has taken me a couple of months to be able to have some perspective on this experience and be able to share it. I’ve taken this near recurrence as a reminder about how delicate my health, both physical and mental, truly is. I’ve thrown myself in full bore into cycling – I am nearing my goal of riding more miles before this year’s PMC than I actually rode all of last year (including the PMC and Day Zero). I am taking steps to reduce my general stress level, eat better, and be more fit. I am proud to say that I weigh the same today as I did when I co-captained the 1990 Bangor High School soccer team – at one point, around when we got married in 2002, I weighed fifty pounds more than I do today.
And finally – my unwavering commitment to raise awareness about cancer survivorship and to fundraise for the Pan Mass Challenge and the Dana-Farber Cancer Institute has somehow become more impassioned. My anticipation for being part of this year’s ride and the Living Proof photo is off the charts. And I am planning something even bigger than a 300-mile, 3 day ride in August for next year, when I will be celebrating being a 20-year cancer survivor, a 10-year PMC rider, and, thankfully, 5-years of being cancer-free. Stay tuned for an announcement after the end of this year’s ride and fundraising.
Thank you for taking the time to read. If you have been kind enough to donate to the PMC already, thank you for your generosity and for helping make cancer history. If you would like to donate and help end cancer in our lifetime, a goal that I know we can achieve, please donate here today! 100% of your donation to the PMC will be used for live-saving cancer research and treatment at the Dana-Farber Cancer Institute.
I get asked all the time about ‘where does the money go’ from all you amazing donors. Here is a great graphic that shows how the money went to work at Dana-Farber Cancer Institute last year. This year, the event’s goal is to raise $45 million so that the 36-year total will be raised to a very cool and substantial $500 million. Yup, 1/2 a billion dollars to help cure cancer.
Remember: THE PMC DONATES 100% OF EVERY RIDER-RAISED DOLLAR TO DANA-FARBER CANCER INSTITUTE THROUGH ITS JIMMY FUND. Make your donation today
You can also learn more via the video below which explains “Where The Money Goes” when you donate to my PMC ride. Dana-Farber Cancer Institute President and CEO, Edward Benz Jr., MD, explains the impact of Pan Mass Challenge donations on Dana-Farber’s mission of advancing cancer research and improving patient care. While I have always known that PMC’s support to Dana-Farber is critical to their mission, it is extremely enlightening to hear Dr. Ed Benz highlight specific advances that have been achieved because our collective efforts and contributions.
As you watch this video, I’m sure you will appreciate the importance of the donations you have made. Thank you for your continued support!
This year is my 9th year riding the Pan-Mass Challenge! For a number of reasons, this is going to be a very meaningful ride for me.
I’ll be riding for my dad, who is doing well one year into his treatment for pancreatic cancer.
I’ll be riding in memory of my grandfather, who battled prostate cancer, and my grandmother & aunt, who each battled breast cancer.
I’ll be riding for my mom, who is a breast cancer survivor.
I’ll be riding for my wife and her family, who saw me through my recurrence just four years ago.
I’ll be riding for my daughter, so that she may never have to face this horrible disease.
I’ll be riding for my many friends who have faced this scourge head on.
I’ll be riding to thank all of those who have donated the money that created the treatments that allowed me to celebrate many birthdays (my own and those of others).
I ride for my fellow Living Proof riders, especially my teammates Diane, Suzanne, Betsy, and Melissa.
I’ll be riding because I can. I am fundraising because I am Committed.
In 17 days, I will hop on my bike and go the extra mile. Actually, I will go 100 extra miles to be exact. I will ride 300 miles (not the mere 192 miles of the official Pan-Mass Challenge), all the way across Massachusetts from the NY border to the end of Cape Cod in just 3 days.
Why? Because we need to make cancer a distant memory.
Please make a donation today to remember those who have passed, to honor those who are stricken, and to end cancer in our lifetime. Thank you!